Journal Entries
What’s it like living with alopecia?
Alopecia an autoimmune disorder that causes the immune system to attack the hair follicles resulting in hair loss. I was eight-years-old when I was diagnosed with alopecia. From a young age, I struggled with my appearance, self-consciousness, and depression.
Deciding when to shave: Reclaiming My Identity
We all know what comes next. The daily terror of finding more patches. Being anxious about patches growing larger. Fear over patches showing when the wind blows your hair just the right way. Loss of control as you can no longer keep the hairstyle you love. I had finally accepted Alopecia as a part of my life. Not in a way that defined me, not in surrender. But in self-preservation.
Deciding when to shave: Accepting the Journey
We all know what comes next. The daily terror of finding more patches. Being anxious about patches growing larger. Fear over patches showing when the wind blows your hair just the right way. Loss of control as you can no longer keep the hairstyle you love. I had finally accepted Alopecia as a part of my life. Not in a way that defined me, not in surrender. But in self-preservation.
12 Honest Questions About Alopecia Featuring My Mom!
Parenting can have some difficult moments. When a child is diagnosed with alopecia, the whole family is swept up into a whirlwind of change. There are doctor appointments, questions, treatments, and you are just looking to assure your child will live a happy life in a world that can be very cruel. Through honest conversations, we are given a chance to provide guidance through our experiences and the lessons learned.
Deciding when to shave: The Decision
For those with Alopecia, it is a daily challenge to look in the mirror and accept that how we look, and therefore who we are, will change abruptly and without our consent. At some point, the disease becomes less about losing the hair itself, and instead about losing our identity.